By: Maire Kyriacou
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It’s humbling to realise that everything I’ve taken for granted over the last 13 years, touching Lils, holding her, being beside her, I now have to ask permission to do it.
That now, other mothers’ hands have the unspoken right to touch my daughter.
I have to ask permission to perform the most basic of ‘mum duties’ for my own child.
My. Own. Child.
16 days in the head of a mum during her teenage daughter’s battle with HLH.
After the tragic passing of her young daughter in 2021 to HLH, a rare blood disorder, Maire is an activist to raise global awareness into this and other histiocytic diseases.
Maire currently resides in Cyprus, where she is working on her new projects in between snuggling up with her four fur babies.
The world needs to know about this disease.
A must-read. A heart-wrenching account of Maire and lilys experience with this illness that is practically unheard of. so well written. Highly recommend this book and advise you to have a box of tissues handy
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